At times I am so scared feeling like I am walking on the edge of 2 outcomes. And I am not ready to get tested for genes since not sure if I can deal with the results in case it's unfavorable. Hello johnsmith , Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others.
According to what I've read the two conditions are not linked but are similar. Excerpt from article below — "Many people with BFS fear that it can turn into ALS, but the two disorders are different and do not seem to have any significant link to each other. Anyone who is uncertain of their symptoms should return to their doctor for a diagnosis. You mentioned not being ready to get tested to see if you the same genes as someone in the family with ALS. If it were me, I would want to know so that I can do more research and putting together an action plan if needed.
Wouldn't you be somewhat relieved to know what you are up against by getting tested? Create an account to connect with other patients and caregivers like you. Ask questions, get answers, and give and get support.
Also follow blogs from Mayo Clinic experts. Benign fasciculations may be challenging to treat. However, many people find they can manage their symptoms with lifestyle changes. A key sign of ALS is what is known as muscle wasting. The affected muscles will atrophy or get smaller over time. This also means that a person with ALS will begin to feel weaker as the condition progresses.
Muscle wasting does not usually occur with BFS. While both conditions create muscle fasciculations, fasciculations appear to be more widespread in BFS. The twitching also affects the muscle while it is resting. However, it will stop when the person starts using the muscle. In ALS, twitching can start in one place. However, it will often spread to the areas near that starting point rather than appearing in random places.
However, the two disorders are different and do not seem to have any significant link to each other. BFS has no known cause or permanent treatment, and symptoms can disrupt everyday life. There are some lifestyle changes that can help make a difference in some people. If a person is experiencing persistent muscle twitches and has not yet been diagnosed, they should speak with a doctor. The doctor may need to rule out any other possible causes or underlying conditions.
By working directly with a doctor to diagnose BFS and develop a treatment plan, many people find they can manage their symptoms well. Many factors can cause a muscle twitch, including exercise, nutrient deficiencies, and health conditions that affect the nervous system. Muscle spasms can affect anyone and occur in any area of the body, but they are usually not serious.
Learn about the causes, symptoms, and treatments…. Many issues can cause finger twitching. Some are harmless, while others are more serious. Read on to learn about the potential causes and their…. A look at lip twitching, a complaint causing involuntary movement. Included is detail on the role caffeine intoxication plays and when to see a doctor.
Twitching is the result of the sudden contraction or release of a muscle. Myoclonus is the medical term for these fast, involuntary twitches. Benign fasciculation syndrome: What causes muscle fasciculations? ALS Outlook Benign fasciculation syndrome is persistent muscle twitching, tingling, or numbness in one or more muscles.
What is benign fasciculation syndrome? BFS "weakness" on the other hand, is pretty much only fatigue and although you may "feel" weak or drained-out, if push comes to shove and you put aside the pain, fatigue, stress or whatever else you have, you still have your real strength. I mean if a car was coming at you and you had to jump out of the way, you still could, where an ALS patient couldn't move at all.
Without ALL of those symptoms and then some , you have ALS about as much as someone with a common headache has a brain. That was a great, easy to understand, article.
That pretty much sums it up in simple terms. I wonder who wrote it. Chemicals get released in your body that amplify the feelings, weakness and twitching. It is only normal. You said you do construction. Be up on a roof doing some construction and take a near fall It is a natural process that fear causes. It doesn't seem normal or likely to you because you haven't done anything physical to make you feel like that.
Now add self strength testing all day and it compounds the stress and fatigue and makes you feel weaker and more tired, plus it causes some cramping from time to time. All of this combined puts you exactly in the situation and mind set you are in right now. It causes depression, anxiety, loss of work, loss of family participation, loss of happiness and so on.
No twitch on the planet has ever caused any of that. It is all because of fear itself, fear YOU cause on your own. Cured to the point that BFS is no more bothersome than anything else that happens in our daily lives.
There is no wishy-washy ness about ALS. Once you feel weak in one spot, it won't feel better in 2, 5 or 8 days later like BFS symptoms do. LizT Very helpful member. I think this should be a sticky! Glad they are up to snuff on THAT forum about the differences! I vote for sticky, too!
I think that instead of trying to explain anything to the posters in the DIHALS forum, we should just tell them to go get answers from the About BFS site, and come back if they can not find answers there. Robynnblue Distinguished member. I run the chat room for BFSers.. It has everything in it that I preach daily Great post Sadiemae.. We now have over members and there is always someone knowledgeable there to talk to I've made sure of it And maybe that would take some of the load off of the DIHALS section.
Great post, Lori. Good work! Bumping this up for the new twitchers!
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